We still have more to look into, but it seems we will be staying on the present treatment course. We spoke with Molly's current UNC doctor today and discussed switching to the lower dose. She contacted one of the doctors in Montreal about the lower dose and the stop study and after talking with him feels that we should stick with the Montreal dose for the present time. She has assured us that once the lower (Omaha) dose is published that we can reevaluate Molly's treatment and discuss what is best for her. After listening to what she had to say I think that it is in Molly's best interest to stick with the same dosing that she has had up to this point. So, we will be going in to the hospital on the 22nd for Molly's infusion.
Molly continues to be her adorable self and is getting to be a strong little girl. We have been working on tummy time and with my help she is now able to roll from her stomach to her back with minimal assistance!
The vendor came today to measure her for the new seat. I don't think we will have it here for several weeks, but I am looking forward to having a place for her to sit and observe things around her.
I am overwhelmed by the weight of this big decision, but I hope that we will continue to learn more and can make a more educated decision in time.
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