We went driving this weekend and came across a new neighborhood that we could build in. It is the same builder that built our present house, which we love. They have a floor plan option is quite open and would work well for Molly. We could include a full bathroom on the first floor as well as a bedroom. The downside is that it is another 5 miles away from Jim's work and would add at least another 10 minutes to his commute. It is a newer area with neighborhoods going up all over the place. I have liked being in a somewhat established part of town. We are relatively confident that we need to move, but we do have time. The issue is, that if we want to build our own house, that if we wait we will be MILES away from everything and even farther from Jim's work. It is so much to think about. We could also hold out and wait for a house with a first floor full bath to come on the market, but then we are in the situation of owning two homes at once. I love finding the "right" answer and it is extremely stressful for me when there are pros and cons to every option. The house that was for sale in our neighborhood seemed like a winning option, hopefully something else like that will come along again. We have a long list of "must haves" for Molly and then some "nice to haves" for us (like being close to Jim's work) that make our wish list rather long and specific.
On the Molly front...Jim has been having a challenge feeding Molly lately. She wants to grab the spoon and gets quite upset if he doesn't let her have it. I was not having the experience when I fed her, but today she decided that I was no different! She was VERY insistent that she "feed herself" and then refused to release the spoon. It is adorable and also quite messy. Our best "work around" that we have found thus far is to introduce a new spoon with food while she is holding the other. This works for a bite or two and then she catches on and puts an end to it. Man oh man are we in for trouble with this little munchkin. She has a VERY strong will and seems to already know what she does and does not want! She is a character and, thankfully, is a VERY happy little girl.
My mom went to an OI gathering in the Chicago area last weekend (while she was there for work). She saw a lot of the families from the conference and met up with "Dr. Melanie" (a doctor with OI that we met and connected with at the conference). It was good to hear what she learned. It was also hard, because yet again Molly was put into the severe category. We know that there are children who are more severe, but we got to see what a more severe case looks like 10 and 20 years from now and it is hard to envision the path that will lead to that. We have been having such a good stretch with Molly and she has been getting so strong and has been so active. It is hard to think about the future and all of the challenges that will come her way. She is a happy little girl, and I don't envision that changing even with all of the difficulties she will have to face, but it is hard to know that she has so much pain ahead of her. I know that there is research being done and I hope hope hope that they will develop some new treatments in time to help our little cutie.
UNCLE MIKE "THE ROCKER" meets Molly for the first time:
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