We are back from Molly's 7th infusion and happy to have it behind us. This one did not go quite as smoothly. We shaved the same spot on her head and they got the IV in. They took too long to get the medication up to us (4+ hours) and the vein blew and we had to do a new IV. We generally have the IV Specialty team put her IV's in, but it was after 5 and they weren't around. Fortunately, we found another vein on the head to work with. We shaved a spot on the other side of the head and they got the vein without a lot of trouble. She was crying so hard that she started sweating and then there was an issue getting the tape to stick to secure the IV. It was a rough few hours watching her get so upset. I was worried she was going to get physically ill from getting so upset. They ended up pulling a bunch of hair out when they removed the IV, so it was upsetting that we had to go through that part twice. Thankfully the second IV worked until 5 am. We had gotten enough of the medicine (we missed 2 hours worth) so we didn't have to go through another stick.
So, the infusion was over at 5. The IV was removed at 7 (once she woke up) and the blood work was sent down. It then took them until 11:45 to finally release us. We paged the doctor and she agreed that we could go, but someone in the hospital didn't think we should leave yet, so they kept us there for 4 hours more than we needed to. I was going crazy. I know that there are much worse things, but when you have a baby that needs to nap it is frustrating to be stuck there for no good reason. In the end it all worked out. We got the medicine Molly needed and nothing bad happened. That's about all we can ask for.
We are very fortunate that Molly recovers VERY quickly. Within a few minutes of crying/screaming hysterically she is back to her happy self. She is one happy little girl and NOTHING is going to keep her down for more than a minute or two!
No comments:
Post a Comment