Whew! We are home from Molly's 9th Pamidronate infusion - hooray! They seem to sneak up on us so quickly.
They ended up doing her infusion in her right arm this time. A first for us. She had to wear these stiff velcro bands on each arm (called "No No's") so that she didn't pull the IV out.
Her last infusion she received 5 mg of medication. I was a little slow to check the dosage this time, and when I did I immediately panicked. Her dosage this time was for almost 11 mg - more than double her last dose! She weighed almost 2 lbs more, but this was a HUGE jump. In the end I think it will all work out, but it was quite disconcerting to see such a drastic change in dosage without any discussion. After a late night page to the doctor, we learned that the Montreal protocol calls for an increase in dosage after 1 year. Molly did fine and seemed unphased by the increase.
We are home and doing well, but all a bit tired.
Molly now has her first official word. She has been saying "mama, dada, nana" and a few other "words" for a while, but not consistently for the right reasons. She is now definitely saying "Dada" and looking right at Jim. Finally, her first word!! Hooray. She seems to understand so much, it will be nice for her to express a bit more. She is signing "more", "swing", "pick me up", and nodding and shaking her head.
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