A Good Report

"I didn't put the marker in my mouth" :)


This is the first time I asked her to smile for the camera and she actually did it!

We went to UNC today to meet talk with the metabolic dentist about Molly's teeth. I was prepared for the worst, and have been anxious about the appointment all week. He noted that her bottom two teeth are wearing down, but not to the point that he is concerned as of yet. He also said that the nerve recedes faster than the tooth wears down, so he did not feel that they would be painful even if they wear to the gum line. Whew! It does seem reasonable for us to start saving for her teeth, but hopefully we will be able to wait until all of her baby teeth are in (sometime after 2 years old) to do it. The goal is to wait and do them all at once because she has to go under general anesthesia so we don't want to have to go through that process too many times. Insurance should pay for the anesthesia and hospital portion and dental may pay for the capping, but from what I've heard that is not likely. It cost somewhere between $5-6k, which is better than I had heard, but still A LOT of money!! Even still I walked away feeling better than when I walked in. We are going to research finding financial assistance and hopefully will find some resources before she needs the work done.

We are still battling with the insurance company regarding her Pamidronate coverage. We don't seem to have made the right contacts, which I think is a major part of the problem. Most insurance companies assign you a Case Manager, but so far we haven't been able to get this with United Health Care. They have been paying for most of our requests in the past year so we haven't been overly concerned, but now we are scrambling to get this resolved without a lot of help from them. We are starting to look into ordering her first wheelchair and from what I understand it will take 3-5 months for them to process and approve that, so we are about to learn all about how to "work" with them.

We are also getting ready for our OI gathering on Saturday. We are so excited to get so many families together. It should be fun and educational for all of us.

Jim will be working to get some new pictures (and possibly video) up online soon.