Dr. Esposito wants us to wait another week or two before we encourage her to start standing. She seems ready and is doing a lot of walking in the hot tub.
We are waiting to hear from Montreal Shriner's regarding Molly's application. You have to be apply and have your case presented to the medical board in order to be accepted for treatment there. We had expected to hear by now, but are hopeful that we will be able to schedule an appointment soon.
We are getting ready to have a meeting with the school system about enrolling her in a preschool with a school provided aide. She is eager to be in a school environment, but needs a 1:1 aide, for obvious reasons. I am nervous that this is going to be a long battle, but I hope to be surprised. I am trying to research what is required in order for her to be eligible. From what I have read thus far she should definitely be eligible and most of the other families I know of with kids with OI have had their children in public preschool with an aide - so keep your fingers crossed!!
We are also in the last stages of researching a lift for the van so that we can take her power chair with us outside of the neighborhood. We have searched for resources to help pay for the lift, but thus far have not found any. There is a $1,000 rebate for vehicles less than 6 months old, so we will at least have that money coming back to us, thanks to the warranty replacement of our Honda van.
We are also beginning the process of applying to our medical insurance to get Molly's teeth capped. Her teeth are wearing down fairly quickly and the dentist thinks it will be appropriate to cap them (an 8 hour surgery) in another 6 months or so. Now, we have to battle with insurance to get it covered.
Molly is entertaining us by the minute with her sense of humor and sharp wit! When I spell something for Jim, Molly will ask "what did Mommy spell" which makes us all smile. She is playing hide and seek a lot and is now hiding a toy in her hands, or her hands in a book and asks us to find it with a huge grin on her face. She will say that "Daddy is such a good boy, I love him" and the same to me :). She is also really enjoying pretending to be a princess and tells me I am the King. We go "shopping" while in the hot tub and pick out imaginary crowns and magic wands (hers is of course Purple). When I tell her she can't do something she will ask "why" and then say "talk to me" (which means explain it to me).
Livi came over for lunch today and the two of them were adorable playing together. They really just love being together and it is adorable to watch. Molly has a lot of work left to do as far as sharing goes, but she has gotten a lot better.
She has started asking us to tell her No and she laughs and goes on to the next thing and tells us to "tell me no" again and again. At bedtime she told us to "tell me no napping" and we all laughed a told her, no we won't tell you no napping, it's bedtime. Jim started carrying her up the stairs and our clever daughter said "tell me no going upstairs" she is very crafty!
Here are some videos:
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