Molly seems to have a fracture of some kind in her neck. She woke up cranky and we noticed that she wasn't moving her head from side to side. She hasn't nursed well all day, but has still eaten her solid food. She has been quite unhappy and seems to be quite uncomfortable. It is hard to see her unhappy and not to be able to help more. I think we are going to have to go on codeine this evening, but hopefully it will only be for a short while. She is on the floor now playing with her toys and while she is a bit fussy, she still seems to be enjoying herself to some extent.
We head in tomorrow for her infusion - hopefully it will all go smoothly. We are beginning to get the hang of the routine. It has been 8 weeks since her last infusion and it seems that that is a bit too long. She generally gets them every 6 weeks, so I think we'll try for 7 next time and see how that goes. We have noticed that she has been quite fussy over the last 5 days or so, but we blamed that on teething. I think it is clear now that it is bone related and not her teeth.
Thank goodness for pain medicine and THANK GOODNESS for Pamidronate (her infusion drug). We have such a fun, happy, and active baby thanks to the help of PAM (as we have come to call it). Here's to a good night sleep for Molly (and the rest of us).
2 comments:
So sorry you guys had a tough day. It breaks my heart that she can't tell you what's wrong. Good luck with the infusion tomorrow. Hopefully that'll help things. My thoughts are with you. And the pictures of Molly reading are adorable! Still hoping to see you all at Thanksgiving!
I just emailed your mother, Sarah, to say how well Molly is doing and then I read your latest entry! I'm so sorry that she is uncomfortable and that your hospital visit is delayed- a wise soul told Gib and Abby that it is two steps ahead and one step back- Molly looks and sounds very happy, kicking her musical toy and squealing- a wonderful sight!
I check Molly's blog daily, right after reading Ellie's. Any plans to come to Maine? I'd love to meet Molly.
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