Today was a good one for Molly. She was fussy, but just because rather than due to pain. We are beginning to wean her off of the Codeine and I may have backed off too much, which may be the reason for the fussiness. It's always a guessing game with this little girl.
We should have an answer from the insurance company by Thursday - keep your fingers crossed! I am so anxious to have her seen by the experienced staff in MD.
I was reading the OI group messages and there was a very sad one. A family had a little baby diagnosed with Type II (generally lethal). They brought him home on the 1st and he died on the 4th. This is the closest I have ever been to anyone loosing their baby. It makes me so sad for this family and also makes me appreciate how fortunate we are. I wrote to the mother, but didn't know what to say. It is times like this that force us to look at the road ahead, but also help us to appreciate what we have.
1 comment:
Sarah,
Congratulations on the fine job that you are doing with Molly.
This blog is well written, interesting and informative. Your account of life with Molly, complete with your sharing of daily joys, frustrations and concerns is quite remarkable. It is obvious that you have become a student of OI and that knowledge will be valuable in guiding Molly’s medical future.
We enjoy reading your posts and feel closer to Molly through your words.
JES in STL
Post a Comment