I love her little face in these two pictures, you can see so much personality and spunk in her eyes.
Today was another day on the phone with the insurance powers that be. We have now determined that Kennedy Krieger (where we want to take her for treatment) is out of network. This means that we will be required to pay all expenses out of pocket and then be reimbursed by the insurance company. A rather scary step, but hopefully we will have something in writing from the insurance company before we go shelling out big bucks.
There is a nurse at Duke in the Pain Clinic, who we have never even met by the way, who is working hard for us to find some more effective pain medicine. She has been so helpful and given me lots of suggestions of what to look into. We are bumbling along through this process and she has given me a better idea of what should be happening that isn't. It is amazing to see what some people will do to help you with a sick baby. There is nothing like help when you need it and it is that much more appreciated when it is something as important as this. We are so new at all of this and there is a real sense of powerlessness that comes with this ignorance.
She has now been on ibuprofen for 2 weeks - due to fractures a week apart - and she was only supposed to be on it for 3-5 days at a time. The codeine works to some extent, but she does seem to sleep much better after the Ibuprofen. The fractures happen so close together that it looks like she is going to be on pain medication most of the time. The codeine is one that we have to wean her off of a little bit at a time; we have gotten down to 2 doses a day at times, but just as we get ready to take her off, she fractures again. I am looking forward to finding a better solution for her.
We read Amelia Bedelia today for the first time. She definitely likes Dr. Seuss a lot more - if it doesn't rhyme, she's not interested.
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