We had a nice weekend full of happy Molly moments - hooray! We were able to get together with friends and even went out to ice cream with Molly - another first :). She has been quite happy and "normal" lately, which has been wonderful for Jim and me. We tried the letting her cry thing on Friday night and after an hour and 20 minutes we decided it just wasn't going to happen that night. Saturday we tried using the swing for nap times, which worked out perfectly and allowed her to get the sleep she needed. Saturday night was a later to bed (around 9:00), but she then slept for almost 11 hours - WOW!! I think it will take a bit longer before we can put her to sleep while she is still awake, but at least she is sleeping through the night - hooray for all of us!
We are getting ready for her next infusion tomorrow. I always get a bit nervous as I mentally prepare for the sticks and pokes she has to endure. Once we get past the IV and blood tests, the rest of the time in the hospital is rather relaxed. I am happy that we no longer have the big concern of a low calcium level, it is still possible that it could happen, but not likely.
Molly is getting stronger by the day. Her head control is getting better and better and she is able to handle toys with one hand and move them around etc. We are still reading everyday and she is even interested in looking at the pages now and again.
We are trying to set up an appointment with a helmet specialist while we are in the hospital. The back of her head is getting rather flat on one side and there is a slight bulge, so it looks like she is going to need a helmet to help form a rather "normal" head shape. Oh well, as long as it works.
There are two new videos on her website - scroll down, they are the bottom two in the right-hand column - ENJOY!
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