Molly's infusion went very well on Saturday. It has been so nice doing her infusions at home. I love having the same nurse and having it over so quickly.
We had a great day today. We went to our local PT and went to a huge gymnastics space and she had a ball! There were foam mats and ramps and she went all over the place. Next we went to play with her new friend "Livie" (Olivia). Olivia came out to the car to greet us and Molly started babbling and then the two girls were giggling and squealing with delight - adorable!
I noticed that Molly's teeth are really starting to wear down and it reminded me that we will probably have to prepare to have all of her baby teeth capped in order to protect her baby teeth. This will be costly and will be another surgery under general anesthesia.
We also found out that the state funding we were hoping to utilize to help pay for Molly's power chair will no longer exist for us as of January 1st. So now we need to scramble and try and submit for her wheelchair now in hopes of having a chance to access the funds while they are still available. I was disappointed to learn about this change in funding because it was our back up plan for when our insurance company gave us a hard time about a piece of equipment for Molly. We were hoping that if our insurance company refused a manual (after getting her a power chair) that we would be able to rely on this state program to help get her a chair (once she outgrows the manual she has now). It is so frustrating that all of this equipment is so expensive and generally requires a fair amount of fighting with the insurance company in order to acquire.
I'm sure it will all fall into place and we will make due with whatever happens, but some days are more difficult when several things come into light on the same day.
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