Tuesday, December 18, 2007

The Magic Word

Molly is keeping us VERY busy. She is talking more and demanding things all day. Her new trick is to announce "I need to poop" anytime we mention something she doesn't want to do. We have also been spending quite a bit of time in the trunk of the minivan while Molly sits on the potty. Several times in the past few days I have had to pull over 1/2 or less from the house because she insisted she needed to go right then, and no, she couldn't wait. The good news is she has been dry (and in underwear) for a few days in a row.

We had water therapy today and she did amazingly well. She walked on a little bench just holding on to a pool noodle and then also did a bit of swimming holding on to the noddle. We had a very scary incident after swimming. She was on her potty and fell off the back, hitting her head on the door and landing on the tile floor. Thankfully, it wasn't a far distance and after a few minutes calmed down and doesn't seem any worse for the wear. I have now purchased another travel potty to see if it is any safer. I'm sure she will find some way for this new one to be dangerous as well.

We are trying to get ready for our trip to Maine and are completely overwhelmed. Jim took time off today to help get ready and then will be coming tomorrow to pick up the powerchair and then head to the van lift company as well. So, he is feeling overwhelmed at work and I am feeling overwhelmed at home - not a great combination. Boy do we need a vacation!!

The new manual chair seems to be working very well and she is able to wheel herself around a few feet at a time, which is more than she was doing in the kid-kart. I am SO excited to pick up her new power chair tomorrow!!

Saturday, December 15, 2007

Happy Days

We have had a wonderful week. It feels like things are really starting to fall into place.

Molly has started being able to walk with her walker without anyone holding on to the walker, which is a huge milestone (especially for our backs :). Here is a video of her walking at the orthopedist's office CLICK HERE.

We bought a titanium wheelchair on Ebay and it arrived yesterday. It was a big risk buying something like this with out seeing it and putting Molly in it, but it looks like we are going to be able to make it work very well for her. We went to get a seat belt put on the new chair yesterday and they had already received her purple powerchair, so she was able to take it for a test drive in their warehouse!! Wednesday we go to pick it up and make any necessary adjustments - hooray!!

Honda finally stood behind their product and they gave us a brand new van in exchange for ours. What a huge relief!

The potty training is going really well. Molly is insistent on wearing underwear and yesterday we went all day without an accident!!

Thursday, December 06, 2007


I called the insurance company today to find out the status of our wheelchair request and was completely caught off guard when they told me it was approved. I called the mobility company to have them check to make sure this was accurate (before I started celebrating) and was overjoyed when they called back to confirm it had been approved. They ordered the chair this afternoon and it will be here for us to pick up on December 19th - WOW!! This is SO much sooner than we had anticipated. We are THRILLED!! This is by far the BEST Christmas present EVER!!

In other news, Molly is doing really well. Her vocabulary is just exploding and she is now stringing 3-4 words together. Today's word has been "Cute". Apparently everything is cute (including herself). She is also saying things like "I know", "I did", "Here you go".

She is walking a lot now with her walker and can go up and down a few aisles in the grocery store. She has also started trying standing without holding on to anything for a few seconds.

Jim has been busy teaching Molly some car related trivia and there is a video of her sharing her knowledge CLICK HERE.

Sunday, December 02, 2007

Infusion #13

We had Molly's 13th infusion yesterday at home and it went extremely well. She only fussed when Beth (the nurse) got ready to put the needle in and at the end when we took the bandage off. It has been such a wonderful improvement over going to the hospital overnight.

We are continuing to have success with potty training, but are now using diapers to prevent any accidents. This seems to be working. She still isn't telling us when she has to go, but if we time it right she will go as soon as we put her on the potty and seems to be holding it a bit more. We're keeping our fingers crossed :)