Monday, May 25, 2009

Proud of our Princess

Wow! Molly has been rather frustrated that she has not been able to use her walker since fracturing her collar bone a couple of weeks ago. She has been cruising along furniture and venturing a few feet here and there to get from one piece of furniture to another. I only realized today how capable she has become at walking independently. I had seen her go as much as 8 feet and wanted to capture it on video... below is a video of her walking longer and farther than we have ever witnessed!

Wait 'til you see this...

Molly Walking around our house (please ignore the mess)

We have had a very good couple of weekends. We went to our friends beach house last weekend and had a blast playing in the waves and relaxing on the beach. This weekend we went swimming at our neighborhood pool a couple of times and enjoyed getting together with some of our neighbors. Molly has loved all of the water time - maybe it even helped strengthen her for all of this new walking?!

Molly has just over 2 weeks of school left, which I think will be a difficult transition - I have got to start planning LOTS of play dates. Now that she has started school she asks most days if we are going to get to play with kids.

Way to go Molly! Here's hoping her bones will cooperate and give her a long while of walking before another fracture occurs.

Friday, May 08, 2009

Broken Clavicle

Unfortunately, Molly's clavicle broke today. She was walking in her walker alongside Sarah, and was suddenly in pain.

Sarah, Molly and Gram are on their way back from the Ortho's office now. I'll put up pictures of the xray later this weekend.

Update: Here is one of the xrays:

Also, I have some pictures from last weekend. Here is a picture of Molly with Avery and Alexi, who also both have OI.

From Molly Spring 09


Thursday, May 07, 2009

All is Well, Just busy and tired

I know it has been far too long since my last post. Molly has been keeping us busy. She has adjusted very well to school and this past week increased from 2 to 3 days per week. We have not seen a lot of peer to peer interaction yet, but I know that will come with time. She has been wonderful at engaging the adults and now we are all working on keeping her safe (which means being close by) but allowing her to observe the classroom without adult interaction (still a work in progress).

I slowly worked my way to out of the classroom and down the hall. It was very stressful in the beginning to be worrying about her the whole time we were apart, but I am finally relaxing more and more now that I feel comfortable knowing that they understand Molly's unique needs and risks. This past week I left the school grounds for the first time and ventured 2 miles away. It was wonderful to have a few hours to myself without the constant worry of where Molly was and what she was up to.

Molly and I headed up to Maine at the end of last month to attend my Uncle Tommy's memorial service (he died at 57 from what we think was congestive heart failure). Molly and I also made a trek to Montreal to go see the doctors at the Shriners hospital. She has been complaining of pain in her back and has also been mentioning that her neck "feels weird sometimes". We met with Dr. Glorieux, the doctor who first started treating OI children with the osteoperosis drug - Pamidronate - that has helped Molly so much. We had x-rays taken of her back and neck and found that she crushed one of her vertebrea when she fell about a month ago. Her back still looks straight and her neck looked fine. Whew! I was so relieved to hear that for now both her neck and back looked good.

We have been exhausted by the end of the day lately and so I will need to work on finding time to write more often about the funny things that she does and says. Her teacher, Ms. Lynn, had larangitis last week and ever since Molly has been saying "I am going to change my voice.... there I think I changed it, but I'm not sure". Today she told her new aide, Miss Teigh, that she lost her voice... they looked and Molly thought it might be in her shoe, but it was moving too fast for her to get it! I need to start carrying pen and paper with me to capture more of the funny things she says. Three is a very fun age, but extremely exhausting. She is battling with us throughout the day and by the end of the day Jim and I just want to collapse!

I will leave you with a statement an injured veteran said on Extreme Home Makeover that I thought was a good goal... "One person can make a difference and I think everyone should try."

Friday, May 01, 2009

Molly Haircut

I haven't taken any good pictures of it yet, but Molly decided to get her hair cut last week. Here is a picture taken from my phone.