Monday, September 21, 2009

Surgery updates





We are at the Omaha children's hospital now for Molly's surgery. We'll probably be re-rodding both tibias today. I'll update the blog through the day as we have progress.

12:22pm
They have accessed her port, and now she is off to get x-rays. They had to bump one kid with a fracture ahead of us, so our surgery will likely be around 2pm central time today. Poor Molly hasn't had anything to eat since last night, and is getting hungry.

2:15
molly is in for surgery. She was in good spirits while we waited for everything to be ready. The surgery should take about 4 hours.

3:40
Surgery is finally underway. It took a while to get the all of the prep done.

4:05
Things are still underway, working on the first leg. Nothing out of the ordinary to report.

4:55
They have finished with the first leg, and they are moving on to the next. So far so good. We talked about having an epidural this time, which should help with the pain and recovery after the surgery is finished.

6:00
They have finished the other leg. There was less bowing it that leg, so it went more smoothly. Seems to have gone well throughout the surgery. We will probably see her in teh next 1-2 hours.

6:30
They are finished with the surgery and she is now being moved into recovery. He felt things went well. He did one incision at the mid-tibia area for an osteotomy (surgical break) and both fibulas are also broken. She may be slightly shorter on the right side due to the way the fibula is sitting, but he felt that it will balance out on its own or with subsequent surgeries and his main goal was for her to heal from this one. He noticed a lot callus (bone healing) on the front of the right tibia, which told him that she has been breaking that bone off and on for quite a while.

We should be able to see her in the next 30-45 minutes. The anesthesiologist is redoing the epidural because she wasn't getting the complete pain coverage that Molly needs (I don't want to know how they know that), but we are hopeful that they will have it figured out by the time we see her and that she will be comfortable for the next 1-2 days while it is in.

7:30
They are still trying to get her epidural set up. It will be a little longer before we will be able to see her. This waiting is unbearable.


9:30
We are in the room with Molly, and she is sleeping in bed. The Epidural seems to be helping more with pain management than previous surgeries. She asked for some water when we got into the room, and then she went back to sleep.

10:30

We're on the medication roller coaster. She was doing OK when we got up here and has since come to and been upset and in pain. She screamed and was angry (understandably so) and we are now trying new medications. We have started with morphine and will soon be adding some valium to the mix. Here's to tomorrow or the next day when I won't have to hear my daughter whimper in pain.

7 comments:

Dottie said...

Thinking about you guys. Thanks for the updates. Call if you need to talk.

Shannon Biondo said...

You all have been in my prayers today. Looking forward to your next update.

Anonymous said...

Thanks for the updates, we have been wondering how things are going. We'll check back later. Ruth

Anonymous said...

Thanks for the updates. We are glad to know that surgery went well. We are praying for Miss Molly.
What a brave little girl!

Gram & Papa

Dottie said...

So happy the surgery went well. Hope you get to see her soon and her pain in under control.

Melissa Swartley said...

We're thinking of you all! Glad to hear that surgery went well! Molly is so brave! Hugs!

Magda said...

I'm glad the surgery went well. I'm sure Molly will feel better soon. She's such a lovely girl :-)
I've been following her story for some time now but never left any comments.
I suffer form OI as well. I'm 26 years old and so far I've had 18 surgeries, about 60 fractures that I know of and probably as many that were never diagnosed. I know exactly what Molly's going through. Take care sweety :-)
Big hugs and kisses from Poland,
Magda