At the conference, they had these great demonstration bones. This is what a femur looks like with the F-D rods that Molly has. These telescoping rods are designed for kids with OI. They attach at either end, and grow to be twice the size as they were when installed.
Molly with Dr Esposito, our great orthopaedic surgeon.
OI kids on the dance floor with Dr Glorieux. These kids are largely doing as well as they are thanks to his work with bisphosphonates.
I think the bunnies were one of Molly's favorite things at camp. She was patting them every chance she had.
All of the OI kids at camp:
The rest of the OI conference and camp photos:
http://picasaweb.google.com/jsulliv/2010OIConferenceAndCamp#
Camp videos
http://www.youtube.com/watch?v=zTUMvHTDJzU
Molly racing wheelchair athletes in the airport
http://www.youtube.com/watch?v=fK7q6RVA8pc
Playing baseball at friend's house
http://www.youtube.com/watch?v=lgKRRqF-zKc
1 comment:
I wish I could have gone to it, but maybe next year.
Molly looks great!
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