Molly has grown so much in just the few weeks since school started. It is clear that she is feeling like a "big kid" and just beaming with joy. This is such a fun time in our lives. We have been walking to school and Molly drives her power chair, which has been great for her sense of independence. There is another girl from her class that we often walk with and the two girls cannot stop chatting and smiling. They are both "girly girls", so a lot of the discussion is about what they are wearing and how their hair looks etc. It is so wonderful to see her "walking" side by side with a classmate to school. I had hoped this would happen at some point, but am so excited it has happened so quickly.
Molly has been asking a bit more about why her bones break easily and why her bones are different. We have had brief discussions about this off and on, but I think came to a better understanding together this week. She said that her bones were "bad bones" and should be in "time out". She asked, "that's alright isn't it? Bones don't have feelings do they?" We talked about how it wasn't anyone's fault when one of her bones break and that was just how they were made. I am still trying to figure out exactly how to help her to understand her condition and feel good about herself. We talked about how there are lots of times when her bones don't break, so in some ways they are "good bones". There are some people with Brittle Bones that can run and jump and some kids with brittle bones that cannot stand. She is lucky for all that she is able to do and that there are many whose bones don't allow them to do all the fun things she can do. I don't know if this was helpful to her, but it gave me a new perspective and appreciation.
I will work on writing this more clearly and concisely later... off to train Flash :)
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