Sunday, November 02, 2008

Our LIttle Skunk



Molly with her best friend "Livi" holding out her hand to hold...


All of us with Molly's "Potato Head Pirate Pumpkin" and two we carved as a family...


Molly with all of her "Loot"...


Molly is doing remarkably well at the moment and we have had a good weekend. Molly was a skunk for Halloween and had a wonderful time. We went to a friends for a party before trick-or-treating and then went out with a group of kids from the neighborhood. Molly drove her chair around and was literally humming she was so happy. It was adorable! Jim and I took turns carrying her up to the door and she said "trick-or-treat" and was very excited to pick out her own candy, searching for purple packages whenever possible.

Here is a video of Molly walking without her walker better than she ever has!! (CLICK HERE)


We had a pumpkin carving party last weekend and Molly had a blast having so many kids here at the house.

We are going through some further frustrations with the process of getting Molly the services she needs for preschool. They called last week and want to arrange a social setting to see what my specific concerns are. They told me that I would be in the doorway and able to see her the whole time - I don't know WHAT they were thinking. I then told them that I would be right at her side the whole time and would like the other children (2 others) to have their parents right there with them as well. She said - what if the OT was there to watch her? I explained that there would not be enough time to train the OT to be an appropriate aide to Molly. They have agreed to "allow" me to be at her side for the observation. I am feeling so frustrated and alone going through this process. We are now going to bring up the possibility of getting a lawyer to help advocate for us, but really hope it does not get to that point. Most of the other OI children we know throughout the country have been given the appropriate services (a 1 on 1 aide) without even having to ask for it, including children here in North Carolina.

1 comment:

Anonymous said...

Molly...you ROCK!!! Your walking is awesome...you GO girl!!!

We're so glad you had a great Halloween!!

See you soon,

The Eash's