We have been home for a couple days now, and Molly is feeling much better. We have primarily medicating with Motrin, only using stronger pain meds now and again as needed.
Here is a picture of her having fun in her room earlier today.
Molly was born on 1/13/06 with Type III Osteogenesis Imperfecta (Brittle Bone Disorder). I have created this blog to share our ups and downs with friends, family, and others in a similar situation.
Sunday, October 24, 2010
Friday, October 22, 2010
A great day in St. Louis
Molly is doing amazingly well. I am always happily surprised by how much better she does once we get out of the hospital. She had so much anxiety that anytime anyone walked into the room in the hospital she would start to panic and ask if they were going to hurt her. So hard to see her so worked up and scared.
She allowed us to take the splint off and finally took a moment to calmly move it and confirmed what Dr. Esposito tried to convince her of, that her right leg shouldn't hurt too much. She has done really well with transfers today and seems to be tone better. So glad.
We head home tomorrow. It will be nice to be back in our own house and beds after a long week.
She allowed us to take the splint off and finally took a moment to calmly move it and confirmed what Dr. Esposito tried to convince her of, that her right leg shouldn't hurt too much. She has done really well with transfers today and seems to be tone better. So glad.
We head home tomorrow. It will be nice to be back in our own house and beds after a long week.
Thursday, October 21, 2010
Out of the hospital
We are out of the hospital :). Molly is doing well. She is stll having pain during transfers, but once she is settled seems to have only a little pain. We are in the car and beginning our 7 hour drive to St. Louis. Should be there before midnight :) we are all glad to be out of the hospital. Thanks to all for your notes and phone calls. They mean a lot.
Wednesday, October 20, 2010
Things getting better
Until now, Molly has banned us from taking any photos of her in the hospital. Today she is feeling well enough that we were allowed to take a few pictures.
Earlier today, Molly had fun doing a puppet show in her bed. I have a video of it that I'll put up some other time.
Today we were able to take out the epidural. Before we took it out, Molly was able to turn off the medicine herself.
Molly also got out of her bed for the first time today to go get neck x-rays (unrelated to surgery). Here's a picture of her throwing coins into the fountain in the lobby. Molly had so much fun exploring that we stayed out of the room for a couple hours.
Earlier today, Molly had fun doing a puppet show in her bed. I have a video of it that I'll put up some other time.
Today we were able to take out the epidural. Before we took it out, Molly was able to turn off the medicine herself.
Molly also got out of her bed for the first time today to go get neck x-rays (unrelated to surgery). Here's a picture of her throwing coins into the fountain in the lobby. Molly had so much fun exploring that we stayed out of the room for a couple hours.
Tuesday, October 19, 2010
Finally getting some sleep
Molly didn't sleep through the night, and finally fell asleep this morning at 10am. Compared to past surgeries, she is doing pretty well, but there are still moments where she is in pain, and gets scared by the situation.
Things should keep getting better from here on out.
Things should keep getting better from here on out.
Monday, October 18, 2010
Surgery day
Molly is having both f-d rods replaced in her femurs.
We will update the blog with news as the day goes on.
Right now we are in what Molly calls the "boring room". We will update once again when things are underway.
1:25 Molly just went back for surgery.
4:15. Still waiting, no updates yet.
4:20 I didn't wait long enough to update! Dr Esposito came by right after I hit post. Surgery is complete, both femurs have new rods. Right leg was an easy take old one out, put new one in. Left leg had the bent rod, and needed an osteotomy for the new rod. Before the surgery, we had some conversations about rodding the left humerus (upper arm bone), because it is bowed with many recent fractures. After talking to Dr Esposito, we have decided to put the humerus rod off to another day. Recovery for the femurs alone should go better this way.
Looking forward to seeing our adorable girl again.
I also forgot to mention that the new rods are both longer and wider in diameter than the previous ones. This is good, as they should be less likely to bend again any time soon.
6:15 We are up in the room with Molly. Sleeping now, and feeling some pain when she wakes up. We are hoping that the epidural works to keep things numb, and we won't have to fight any major pain with narcotics. Here's hoping!
We will update the blog with news as the day goes on.
Right now we are in what Molly calls the "boring room". We will update once again when things are underway.
1:25 Molly just went back for surgery.
4:15. Still waiting, no updates yet.
4:20 I didn't wait long enough to update! Dr Esposito came by right after I hit post. Surgery is complete, both femurs have new rods. Right leg was an easy take old one out, put new one in. Left leg had the bent rod, and needed an osteotomy for the new rod. Before the surgery, we had some conversations about rodding the left humerus (upper arm bone), because it is bowed with many recent fractures. After talking to Dr Esposito, we have decided to put the humerus rod off to another day. Recovery for the femurs alone should go better this way.
Looking forward to seeing our adorable girl again.
I also forgot to mention that the new rods are both longer and wider in diameter than the previous ones. This is good, as they should be less likely to bend again any time soon.
6:15 We are up in the room with Molly. Sleeping now, and feeling some pain when she wakes up. We are hoping that the epidural works to keep things numb, and we won't have to fight any major pain with narcotics. Here's hoping!
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