Molly was born on 1/13/06 with Type III Osteogenesis Imperfecta (Brittle Bone Disorder). I have created this blog to share our ups and downs with friends, family, and others in a similar situation.
Sunday, October 24, 2010
Good to be home
We have been home for a couple days now, and Molly is feeling much better. We have primarily medicating with Motrin, only using stronger pain meds now and again as needed.
Here is a picture of her having fun in her room earlier today.
Hello! My name is Erin Burch and I am a senior nursing student at Spalding University in Louisville, Ky. Right now, our class has divided into groups of three and are in the midst of projects on certain conditions that there is a lack of knowledge on. We have osteogenesis imperfecta. We found your blog and have read just about every post. Your family's story is so inspirational and we were each touched not only by the reality of the disease, but by the strength your family has shown. We have to do a project that relates to this disease, and we chose to write a children's book in hopes of it helping a child who is diagnosed along the way. We would love to use Molly's story as somewhat of the basis of the story, while also sprinkling facts about the disease in as well. I could not find an e-mail address for you, so I thought my best bet of trying to get ahold of you was through a post on your blog. We need your consent to be able to use some of Molly's story, and would understand if you would rather us not. My email is eburch@spalding.edu. I would love to hear from you!
2 comments:
I'm so glad that you are back and that Molly is doing good!!! We were thinking of her a lot! Love, Anke
Hello! My name is Erin Burch and I am a senior nursing student at Spalding University in Louisville, Ky. Right now, our class has divided into groups of three and are in the midst of projects on certain conditions that there is a lack of knowledge on. We have osteogenesis imperfecta. We found your blog and have read just about every post. Your family's story is so inspirational and we were each touched not only by the reality of the disease, but by the strength your family has shown. We have to do a project that relates to this disease, and we chose to write a children's book in hopes of it helping a child who is diagnosed along the way. We would love to use Molly's story as somewhat of the basis of the story, while also sprinkling facts about the disease in as well. I could not find an e-mail address for you, so I thought my best bet of trying to get ahold of you was through a post on your blog. We need your consent to be able to use some of Molly's story, and would understand if you would rather us not. My email is eburch@spalding.edu. I would love to hear from you!
Thanks!
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