It has been a busy few weeks between Molly, her therapies, battling with the insurance company and trying to figure out the right dose for her Pamidronate infusions. She has been fussy the past week or so, off and on, which has certainly added to the challenges. It is hard to know if it is just a new phase of being a toddler, or if she is really started to be uncomfortable (bone pain) because she is due for her infusion.
After A LOT of phone calls I think we have finally gotten unofficial confirmation that insurance will cover the OR, anesthesia and other hospital fees related to Molly's dental surgery on September 17th. I won't breath a sigh of relief until we have it in writing, but we are hopeful that this is the end of this worry.
Molly has been cute as ever and making us laugh and smile every hour. She has started getting off the potty and announcing what her poop looks like. "Look Mom... a hot dog"... "No, I said... it is NOT a hot dog!!", to which she replied "I know, I'm pretending".
She has had a lot of different imaginary friends around lately. There is the purple octopus, Fifi, Peter Pan (who likes to honk the horn when I'm driving), and now an imaginary girl with an orange walker. She has started saying things like "the pretend girl would like some fruit"... She also was up in her crib yesterday, "not napping" and shouting (through the monitor) "Roar... I'm a dragon" and clearly entertaining herself with all of the growling.
Dr. Glorieux, the endocrinologist from Montreal, got back to me today and encouraged us to switch to Zolendronate (another bisphosphonate like Pamidronate), which only has to be given 2 times a year, as opposed to the 4 right now, but we are hesitant to change to something that has only been used for the past few years. We have decided to continue with PAM for at least this treatment, but at his advice have decided to give her a full dose (as opposed to the half she has had for the past year). This will mean she gets the same dosage for two days. I am hoping this will go well and that we will see some changes in her bone density.
It has been stressful for me the past few weeks trying to juggle taking care of her as a parent and taking care of all of the medical concerns that we have hit all at once.
We went to a playground today with her PT and she had a wonderful time and surprised Pam (her PT) and me with all that she was able to do. She is one determined little girl!
Here are several new videos for your viewing pleasure :)
On Safari
Dancing on her parallel bars
Molly and Daddy Together
Flying to the Moon
Driving Her Pink Car
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