Wow!!! Molly is 4! It has been a long and wonderful 4 years. It is wonderful to see how much better things are than we were envisioning when she was first diagnosed. We are so lucky to have her in our lives and very lucky to have friends and family around to provide the support and love that we have needed during the ups and downs - THANK YOU!!
Molly is quite excited about her birthday and was on a bit of a high today anticipating her big day tomorrow. We do not have school on Wednesdays, so we are having her party tomorrow, which will be quite fun. Jim's Mom is in town and has really added to the excitement and celebration.
Molly and Gram have done a room makeover for her bedroom and it looks fabulous!! Molly now has a lavender room and lots to accessories to "pull the look together". Thank goodness Gram is good at this decoration stuff. I am terrible and Molly really seems to care (sorry Molly ;).
She has been doing well, but has me thoroughly baffled. She is doing well, but complaining of pain of her legs and arms. She has started walking independently in the house for short distances and seems fairly stable, which is wonderful. It is hard to know how much to encourage her to do without overdoing it.
She got a new lamp that has a touch base in her room, so for the first time she can turn the lights on and off in her room, which is wonderful. I have realized that I need to focus on what are some realistic goals for her independence and then figure out how to achieve them. I'm sure if I had set a goal for her to be able to turn lights on and off this would have come to mind. Anyone else out there have some other good goals for independence? Someone suggested that I have her bring her own dirty clothes to the laundry room, which is a good one - I would love some more!
1 comment:
happy birthday from los angeles, molly!!!!
xo
jason
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