Monday, September 22, 2008

Before and After Pictures

BEFORE...


AFTER...

Here are some before and after pictures of Molly's teeth. We will be getting one of all of her metal "princess" teeth when we find a moment...

Friday, September 19, 2008

Princess Teeth

The first night was a long one. She was up around 10:30, at which point I just brought an aerobed in thinking that would make her less fussy, but nothing seemed to help. She was up several times and at 3:30 was bouncing in her crib asking to go downstairs. We were able to keep her in her crib until around 6, but there was a lot of awake time throughout the night.

Yesterday was OK, but a very long day. It is hard to know what is causing her to be irritable and tired, but it is some combination of the anesthesia, discomfort of her new teeth (and inflammation of the gums), and the cold she still has. Jim stayed home yesterday, which was a big help. We gave her more pain medication last night, which seemed to help a bit. She woke up a couple of times, but only for a few minutes.

She finally got a look at her teeth today and said that she likes her "shiny" teeth :). Hopefully by the time it gets to be an issue with her peers she will be comfortabe enough to handle it. We have told her to tell people they are her "princess teeth" when they ask... hopefully this will be sufficient for now.

She is still whining a lot, but seems much better today. She said it feels better to eat, but complained that her teeth hurt when trying to eat a pear from the fridge - it will take us a while to figure out what works and what doesn't with a mouth full of new teeth.

Wednesday, September 17, 2008

Doing Much Better :)

Molly woke up after 2 hours of sleeping when we got home!!  She seemed MUCH better.  Hooray!  She is still quite fussy, but seemed much more herself.  She wanted popsicles and went on to eat many as a "first course".  A few hours later she was asking for food - a very good sign.

She is still very tired and was asleep before I even left her room tonight.  

She said her teeth felt good while she ate... time will tell.  We haven't gotten a good look yet at how her teeth look, but we're happy to think she is going to be able to have an easier time eating :)

Successful Surgery - We're already home

Molly is still asleep in the car, but we are home. The surgery went well and the staff was extremely sensitive and cautious with their care of Molly. We gave her Versed (which makes her a bit dopey and helped get her into the OR with minimal drama. She definitely remembered her last surgery and said "this is a different 'hosipal' (hospital)". They let me bring her back to the OR and she did cry a little as we left Jim. They had me hold her as they put the mask on to put her to sleep. Very odd being there as they did this. I then placed her on the operating table and everyone assured me they understood the concerns of handling someone with OI.

It was a little over 2.5 hours after that that they came to get me. She woke up feisty and asking for me. It was hard going back to recovery. Her face was puffy and her lips and mouth area are swollen and a bit bloody. She was crying/fussing and a bit ornery. They gave her some medication and she settled down quickly.

She told us she hurt and was very fussy. We got her to take a few sips of juice, so they started the discharge paperwork. She fell asleep on the way downstairs, so we are hoping that a lot of her fussy behavior was just the fact that she is tired. We will see when she wakes up. The top front 4 teeth are white, but the rest are all metal. I haven't had a chance to really take a look, but it was hard to see so much metal in her mouth. I hope that it won't look too strange - especially to her peers. They told us she can get white ones when she gets older if she feels it is important. At least she should now have functioning teeth! I think this is going to be a big improvement for her.

We will keep you posted. Thanks for thinking of her today and wishing her well.

Tuesday, September 16, 2008

Surgery Tomorrow - Wed. the 17th

Molly is scheduled for her dental surgery around 10:30 tomorrow morning. We are all quite stressed to be putting her through another surgery, but we know it is necessary. She complained of her back molars hurting when she was eating, which just makes us feel that much more confident.

We took some pictures this evening of her teeth and will post them - probably after the surgery as a before and after. Her top front will be white and he is going to try and make the bottom front white as well, but the rest will all be metal. It will be such a big improvement from her current teeth that some metal in her mouth isn't such a big concern.

She has a cold now, which has had me nervous - I don't want them to have to postpone, but I think it will be OK. I have been giving her as much Jello, popsicles, and juice boxes as her little body can handle in hopes of keeping her cold under control. Yesterday she had had enough Jello and starting playing with it... I decided to let it go and let her play a bit... next thing I know she is saying "look Mommy... lotion" and is smearing red jello all over her face!! I was worried that she would have a slight red tint that I would have to explain, but it wiped right off :).

We are hoping to be coming home tomorrow night, which will be a very different experience than her last two surgeries. I am hoping she will be in very minimal pain and will be easily distracted with TV and toys, but we will have to wait and see.

Please think of Molly and hope for a successful and uneventful surgery.

I think she knows that something is going to happen, but not in any detail. When we went for her last surgery in Omaha we brought Dr. Esposito a couple of "jibbitz", which pop into Crocs (which he wears in the OR). We went to the same toy store today and Molly said - I want to get a present for the doctor - I cannot believe the things she remembers!! Dr. Wright (the dentist) will be getting a Sleeping Beauty "jibbit" tomorrow :).

Heading to bed now for an early wake-up.

Monday, September 15, 2008

More pictures and videos


Molly getting ready to help start her infusion at home.


The PVC pipe parallel bars get a lot of use these days. Molly has also grown enough that we are going to have to buy some new pipe to make them taller.


I have finally put up the video of Molly playing in Howie's dog crate.
Click here to see the video

Sunday, September 07, 2008

Pamidronate #16 - Full (Montreal) Dose

"Mimi", Rose-Marie Chiasson (Montreal Shriner's Social Worker), Molly and Me

Molly with Dr. Glorieux


Molly had her 16th infusion and is feeling much better. We spoke with Dr. Glorieux, in Montreal, and he advised s to give her a full dose for the next several infusions to increase her bone density and possibly reduce her fractures. This is generally done over 3 days, but we were able to calculate (with Dr. Glorieux's help) how to give it to her over 2 days instead. She was quite perky after her first day and was so hyper after the second day that she couldn't nap.

She took several steps today without her walker and Jim was able to capture it on video... here she is taking 3 or 4 steps on her own!!!

Molly Walking Video


This evening she crawled into Howie's crate and insisted on having her bedtime books read while inside and continually announced "I'm a dog... woof woof". When Jim took her up for bed she said "Look at my armpit, doesn't it look ticklish" - boy is she good at delay tactics!!

Thursday, September 04, 2008

New Videos :)

It has been a busy few weeks between Molly, her therapies, battling with the insurance company and trying to figure out the right dose for her Pamidronate infusions. She has been fussy the past week or so, off and on, which has certainly added to the challenges. It is hard to know if it is just a new phase of being a toddler, or if she is really started to be uncomfortable (bone pain) because she is due for her infusion.

After A LOT of phone calls I think we have finally gotten unofficial confirmation that insurance will cover the OR, anesthesia and other hospital fees related to Molly's dental surgery on September 17th. I won't breath a sigh of relief until we have it in writing, but we are hopeful that this is the end of this worry.

Molly has been cute as ever and making us laugh and smile every hour. She has started getting off the potty and announcing what her poop looks like. "Look Mom... a hot dog"... "No, I said... it is NOT a hot dog!!", to which she replied "I know, I'm pretending".

She has had a lot of different imaginary friends around lately. There is the purple octopus, Fifi, Peter Pan (who likes to honk the horn when I'm driving), and now an imaginary girl with an orange walker. She has started saying things like "the pretend girl would like some fruit"... She also was up in her crib yesterday, "not napping" and shouting (through the monitor) "Roar... I'm a dragon" and clearly entertaining herself with all of the growling.

Dr. Glorieux, the endocrinologist from Montreal, got back to me today and encouraged us to switch to Zolendronate (another bisphosphonate like Pamidronate), which only has to be given 2 times a year, as opposed to the 4 right now, but we are hesitant to change to something that has only been used for the past few years. We have decided to continue with PAM for at least this treatment, but at his advice have decided to give her a full dose (as opposed to the half she has had for the past year). This will mean she gets the same dosage for two days. I am hoping this will go well and that we will see some changes in her bone density.

It has been stressful for me the past few weeks trying to juggle taking care of her as a parent and taking care of all of the medical concerns that we have hit all at once.

We went to a playground today with her PT and she had a wonderful time and surprised Pam (her PT) and me with all that she was able to do. She is one determined little girl!

Here are several new videos for your viewing pleasure :)

On Safari

Dancing on her parallel bars

Molly and Daddy Together

Flying to the Moon
Driving Her Pink Car

Monday, August 18, 2008

A Long Drive to Montreal

We are here, but it was a long day of travel!  Molly was AMAZINGLY well behaved, but it was still a long trip.  

Molly was running up and down the halls after being cooped up in the car from 10:30 to 6:30.  She is in good spirits and we are hopeful that things will go well for us tomorrow.

We will be up early in the morning for a 7:30/8:00 appointment.  

We thought about leaving tomorrow night after our appointments, but have now realized that would be just too long of a day.  We'll head out on Wednesday and hopefully have a faster return to Maine.

Jim flies in on Thursday evening and we are very excited to see him again - this has been a VERY long time apart!!

My friend Bobbi and I had a great night to ourselves on Friday night and window shopped and went to a movie etc.  It was so nice to have almost 2 days of kid-free time!!  

While I was away my parents were taking care of Molly.  My Mom asked her if she would like to have fruit cocktail for dessert and Molly said "Mommy said I'm too young to have a cocktail" - too cute!!

It is late so I will try and update tomorrow night...

Tuesday, August 12, 2008

The Conference and Maine

We have been very busy and Molly is doing quite well.  We headed up to the conference on Jul 30th and found the lobby already full of "little people" with walkers and wheelchairs.  It was fun to feel like one of the crowd.  It was also overwhelming trying to keep Molly safe as she buzzed around in her walker among all of the wheelchairs (almost all of the teens and adults were in chairs).  

We met with Dr. Paul (a psychiatrist) and also Dr. Smith, an orthopedist from Chicago Shriners, on Thursday.  We learned some good tips about getting Molly to reach up for things to encourage a long and strong spine and were given some advice regarding the SMO braces she will get when we get back to NC.  SMO braces are orthotics that will give her ankles support and hopefully will help her to feel more stable and balanced on her feet.

It was wonderful to reconnect with families from the last conference and also to meet many new people.  People with OI often look somewhat a like and it was strange to see so many people that could have passed as Molly's sisters/brothers or cousins etc.  

My parents both came as well, which was great both for the support as well as to help absorb the vast amounts of information there is being presented at the conference.  We put Molly into childcare at the conference, which was a big first for us.  I was terrified to leave, but felt confident that the staff had all been trained by the OI Foundation.  She was in the under 3 room with 2 other kids and 3 adults!  It was a perfect first experience for all of us.

There was a couple there with their 5 month old daughter with OI and we all found ourselves showering them with advice and support.  It is so overwhelming in the beginning and I think all of the parents of "older" children feel a strong need to offer advice, since there isn't that much information out there and nobody knows all of the tricks and challenges better than another parent.  There was also a family from Saudi Arabia there with their 4 children.  Their 10 month old has OI and it was wonderful that they were able to come so far to attend the conference.

Dr. Esposito was there and it was wonderful to be able to show him how well Molly was doing and how FAST she is walking!  She was in the lobby showing him her "running" and tripped on one of the wheels of her walker and took her worst fall to date.  It was terrifying, but was able to get right back up and keep going - we were VERY lucky.  Of course when the surgeon is right there and she falls she is fine.... 

There was a dance on the last night of the conference and Molly had a ball out on the dance floor with all of the other kids.  She was shaking and kicking to the beat - very cute.  She picked out a couple of kids that she seemed to really take to quickly, which was wonderful.

Molly and I flew to Maine on Monday with my parents and, unfortunately, we have only seen the sun once since we arrived!!  It is supposed to be nice later this week and we are hoping to take Molly to the beach for the first time.  

We are heading to Montreal on Monday to go to the Shriner's hospital that has an OI clinic.  We are hoping to get some good information.  

Molly is scheduled to have her teeth capped in September and we are in the midst of battling with insurance to get the procedure covered.  The dental has now agreed to pay 25% of the dental fee, but our medical insurance has thus far denied our appeal for the anesthesia and hospital fees, which is very overwhelming.  I just hope it all works out in the end.

Molly is walking all over the place with her walker.  We built parallel bars (out of PVC pipe) and she is walking and swinging with those a lot as well.  Yesterday, she too one step from the ottoman to the couch without holding on, which was a first!!


Monday, August 04, 2008

OI Conference Photos

This is Alexia and Molly. Alexia is 6 and only learned to walk 2 years ago and is now tap dancing and walking independently!!

Here is Molly with her new purple walker (we had it painted at a bodyshop) with Christina, who lives in Charlotte, NC.  Molly's new trick is to swing like this with her walker :)
Here is Megan (5 with Type IV OI), Avery (6 with Type IV OI), Alexi (6 with Type III/IV OI), Molly, Hannah (5 with Type III severe OI), and Abby (18 months with Type III OI)
Here is Molly with Dr. Esposito showing off her fast walking skills.


The 2008 OI Conference in Washington DC is already over, and we have some of our pictures up online.

We met some great new people, and enjoyed seeing old friends again. Molly also had a great time making new friends. Several times she would stop and say "hey, that is my friend" while pointing across the room at one of her (many) new friends.

Here are the photos. I'll let Sarah fill in more of the details later.

http://picasaweb.google.com/jsulliv/OIConference2008

- Jim

Tuesday, July 29, 2008

Busy Busy Toddler

Molly is doing well and keeping us very busy. She is walking extremely well and I am now even "comfortable" letting her walk around the house (with her walker) while I'm in the laundry room - a huge step for us!!

She is definitely a 2 year old and is testing the limits sometimes every few minutes. She has found that hitting me gets my attention, so that tends to be the way that she chooses to act out. I tried doing time-out, but as soon as the time-out was over and I went to talk to her about why she was in time-out she would hit me again and ask for another time out. Clearly, this was not an effective punishment for her!! We have now started putting her toys in time-out for the day, which is working for the moment, but I think it is only a matter of time before she is no longer affected by this.

She is big into being a princess (Tinkerbell and Ariel are her favorite) and/or a ballerina and prefers to wear a tutu everyday. We have been on and off with the potty. She goes when I put her on, but right now she is fighting me when I try to put her on. She is also battling when I try and change her diaper, wash her face, brush her teeth, get her dressed, brush her hair.... you get the idea :).

She is getting more and more comfortable on her feet and is standing without support for 5-30 seconds. She is also starting to try and climb and reach up high for things, which is rather scary.

Saturday, July 05, 2008

Big Milestones For Molly

Molly has been making some big advances in the past few days and we are so excited.  We have been working on trying to provide more opportunities for her to use her walker and that seems to have allowed her to build up her stamina quite significantly.  

We went to a  6 year old's birthday party in the neighborhood and they had a pony... I thought we would just have Molly pat or MAYBE sit on the pony, but in the end she not only sat on the pony, but rode it all around their yard.  It was wonderful.  She had a ball and it was great 

We went to our friends party yesterday for the 4th and they have a pool in their neighborhood.  Molly walked all the way there herself (maybe only 50 feet or so, but still).  We put her into a swim suit with flotation on it and within 10 minutes or so she was willing to "swim" by herself by doing a pedaling/walking motion with her legs.  We were so happy that she took to being independent so quickly.  I had tried it the day before and she cried and screamed each time I tried, but then after talked about how she had been swimming by herself.  On the 4th she started off a little unsure, but by the end told Jim not to get too close!  She was low enough in the water that it was regularly splashing her in the mouth, but she just spit the water out and kept at it.  We are hopeful that this will be the new norm.

While we were in the pool and Jim was holding her he said "I lost my balance" as he slipped and Molly said "we can find it, call for it", so the two of them walked around the pool calling "here balance".

Today we went to the mall and Molly walked all around a store and then insisted on walking to the elevator and then down 15 plus stores to get to the Disney store.  I was terrified because it was rather busy, but so excited about the rapid development of her sense of independence and her stamina.

On our way home we talked about Molly being a sister (NO we are not pregnant or trying) and at first she said no, but then said she would like to have a baby girl so that they could be friends - so sweet!

Tuesday, June 24, 2008

A Very Happy and Busy Girl




We have been busy, but doing well.  Molly is walking more and more and we are still working on finding her limits.  She starts out almost running with her walker and then slowly looses steam.  She is learning to listen to her body and tells us when she needs to take a little break.  She is extremely excited about walking and asks to walk most places we go.

We watched "Return to Neverland" this weekend, starring Tinkerbell, and Molly asked "can you get me some wings so I can fly....PLEASE mommy?"  Absolutely adorable :).

Howie, our black pug, had surgery on his leg a little over a week ago and had a pin put into his leg.  It was strange going to the vet to see X-Rays of our dog rather than Molly.  We just found out today that the surgery was not successful and he is going to need to have a second operation to try and fix his leg.  

We were planning on taking Molly to the beach last weekend, but a forecast of thunderstorms and high winds forced us to postpone our trip.  Molly hasn't been to the beach yet and I know she will have a ball!!

Molly has started introducing herself as Ariel (from the movie The Little Mermaid) and sometimes will correct you if you refer to her as Molly.  She seems to have become more than a little interested in princesses and tinkerbell.  

Wednesday, June 11, 2008

Good, Great and a Little Bad

Molly is doing well and walking more than she ever has before.  We got an Exogen Bone Stimulator for her that we have started using to help heal her Tibias from her last surgery. The bone stimulator sends ultrasonic waves that some feel help with the healing of non-unions.

We had a long week last week and she finally got her Pamidronate on Saturday.  We were hoping that it would work a miracle and that Molly would stop being fussy.  She seems to be feeling better, but not 100%.  My Mom got into town on Friday and that has made a HUGE help to my mental health :).  

Molly's gums were bleeding last week when she was eating so we went to have a check up with her dentist.  Her teeth have worn down quite a bit and it is time to schedule her surgery.  This was news that Jim and I were not ready for and has been a bit challenging to digest.  We have scheduled the surgery for September 17th, but if there is a cancellation it could be a lot sooner.  It is hard to prepare for yet another surgery, especially at a different hospital where I am not as confident that the staff will know how to handle her.  I know I will be sure to educate the staff between now and then.

Molly has been walking for many minutes at a time and today for the first time walked down the ramp (our front stairs), down the driveway and was starting to walk down the street.  We need to be sure that we don't let her overdo it to quickly or she might be sore for quite some time.  We are still giving her Ibuprofen for pain to manage general pain as well as pain she is complaining of in her knees.

I have a lot more to update, but I am too tired to write anymore tonight...

Thursday, May 29, 2008

Ups and Downs

I just finished writing a post about how Molly improved and an hour later she woke up crying.  I went up and she complained that she hurt her arm and was crying.  This was almost too much for me to handle.  I rocked her and she calmed down.  When I stood up to take her downstairs she whimpered and said her arm hurt.  I brought her down and she begged me not to put her down because it would hurt.  I have learned that it is easier to keep her comfortable when she is sitting on her own and so I put her on her "Elmo couch".  I told her I was going to get her medicine and asked her if it hurt a lot or a little and she cried and said a lot.  It was devastating to hear her in so much pain.  She kept her arm limp at her side.  I asked her to point to where it hurt, but she wasn't willing (or able) to.  

I assumed the fracture was at the same spot as the fracture 9 weeks ago and so I put the splint on the upper arm to see if that made her any more comfortable.  She didn't seem much better or worse with it on.  Our wonderful neighbor, Lori, came over to play with her and read books, which helped raise both our spirits and Molly seemed to be doing well.  We decided to go and have an X-Ray taken just to be sure things were OK, since there isn't a rod in the arm.

It has been a long and emotional week and I hope that Molly has a better week next week.

An amazing recovery

I took the splint off on Tuesday morning to check for sores.  She screamed and begged for me not to touch it, but once I got it off she said it felt better and she didn't want a wrap on it - I was not prepared for that.  We went to the orthopedists Tuesday and had x-rays taken.  It seemed that it was a minor fracture since she was comfortable without the wrap on, but she wasn't able to pinpoint where the fracture was so we wanted to make sure it wasn't in her pelvis and that her rods were OK.  Nothing showed up on the x-ray, which isn't a surprise, but is a good sign that it is only a crack and not a big fracture.  We came home and she started crawling!  She asked "Is this OK?" and when I told her she could do whatever she wanted since she would know what hurts and what doesn't.  Well, she stood right up after hearing this!  This is what Dr. Esposito predicted, but of course I thought he was being far to optimistic.  I'm glad he was right.

Certain movements and especially twisting still cause her pain and unfortunately I haven't been able to predict what will hurt and what won't.  We went to PT today and she walked around quite a bit with her walker for the first time since Sunday.  She wasn't quite as fluid as on Sunday, but seemed to being amazingly well.

We are very excited.  Sesame Street Live is coming to town and we just got tickets for Saturday.  I think Molly is going to have a ball!! 

Sunday, May 25, 2008

Femur Fracture

Molly using her walker at a Hydroponic Farm in Cary:


Molly on her first ride-on toy, scaring Jim and I but having a ball :)


We have been having a wonderful week.  Molly stood on Monday for the first time since her surgery and immediately asked for her walker.  She walked all the way from the family room through the kitchen and into the playroom.  We had X-Rays taken on Tuesday and things looked good, so we were given the go-ahead to allow her to walk as long as it felt OK for her.  She has been walking really well and today at the pet store walked all around without any sign of the limp she had before the surgery.  We came home and she was playing at her plastic chairs and somehow she fell off the chair.  I was a foot away and when I bent down to pick her up she had one foot on the chair and the rest of her body on the floor.  The cry told us that she fractured, but we are still not 100% sure of the location of the fracture.  It seems it is in the left Femur (upper leg), but it is unclear whether the fracture is in the middle or higher up on the leg.  Our wonderful neighbor, Lori, came over to distract Molly and help us figure out where her leg hurt.  We made a splint out of fiberglass material we had in the house and it was a very traumatic experience for all.  She screamed in pain the whole time we were making it, but I knew she would hurt every time we had to move her if we didn't splint it.
The fracture happened around 1:00 and within a few hours she seemed a lot better.  She was afraid for me to pick her up for fear of it hurting, but with a lot of reassurance she let me pick her up and we went out to her power chair and went for a nice walk.  She didn't whimper when I picked her up, so I am hopeful that she is feeling better and that the splint is effectively bracing the fracture.
We emailed Dr. Esposito and have already heard back from him.  He thought that as long as she was comfortable it would be reasonable to wait and see and not go to the ER.  There is an after-hours urgent care place, but of course it is closed today and tomorrow.  Bummer.  Dr. Esposito said that most likely the rod would splint the fracture and that she would be feeling well enough to crawl in the next week or so, but we will have to wait and see.  There is a small chance that the rod could have bent because of the fracture, but as long as it is only minor the leg should heal and we won't have to rush back for another surgery - keep your fingers crossed. 
Jim and I are both feeling rather sad after having such a wonderful morning with her being so mobile and independent.  Molly has had to go a lot, but her spirits are very good and we are hoping she is able to get a good night's sleep despite the fracture.
Here are some videos of her doing well:

Sunday, May 18, 2008

Some New Photos...

Molly and I baked together for the first time.  We made banana bread and had a ball!


Molly was pretending she caught a bird and was offering it to Jim :)

Tripp got this shirt for Molly in Nicaragua (on the back it says para mi)

Molly's fried Livi came over to play and I braided her hair just like Molly's :)


Here is a video of Amanda (the 11 year old with OI) on the local news.  Don't worry, she is just acting and doesn't actually have an arm fracture :).

Thursday, May 15, 2008

Lots to do, but doing well

I have had a hard time finding time to get on the computer, but things are going well.  There has been a lot going on and it feels a bit overwhelming at times, but thankfully Molly is doing well and seems to be feeling well.

Dr. Esposito wants us to wait another week or two before we encourage her to start standing.  She seems ready and is doing a lot of walking in the hot tub.  

We are waiting to hear from Montreal Shriner's regarding Molly's application.  You have to be apply and have your case presented to the medical board in order to be accepted for treatment there.  We had expected to hear by now, but are hopeful that we will be able to schedule an appointment soon.

We are getting ready to have a meeting with the school system about enrolling her in a preschool with a school provided aide.  She is eager to be in a school environment, but needs a 1:1 aide, for obvious reasons.  I am nervous that this is going to be a long battle, but I hope to be surprised.  I am trying to research what is required in order for her to be eligible.  From what I have read thus far she should definitely be eligible and most of the other families I know of with kids with OI have had their children in public preschool with an aide - so keep your fingers crossed!!

We are also in the last stages of researching a lift for the van so that we can take her power chair with us outside of the neighborhood.   We have searched for resources to help pay for the lift, but thus far have not found any.  There is a $1,000 rebate for vehicles less than 6 months old, so we will at least have that money coming back to us, thanks to the warranty replacement of our Honda van.  

We are also beginning the process of applying to our medical insurance to get Molly's teeth capped.  Her teeth are wearing down fairly quickly and the dentist thinks it will be appropriate to cap them (an 8 hour surgery) in another 6 months or so.  Now, we have to battle with insurance to get it covered.

Molly is entertaining us by the minute with her sense of humor and sharp wit!  When I spell something for Jim,  Molly will ask "what did Mommy spell" which makes us all smile.  She is playing hide and seek a lot and is now hiding a toy in her hands, or her hands in a book and asks us to find it with a huge grin on her face.  She will say that "Daddy is such a good boy, I love him" and the same to me :).    She is also really enjoying pretending to be a princess and tells me I am the King.  We go "shopping" while in the hot tub and pick out imaginary crowns and magic wands (hers is of course Purple).  When I tell her she can't do something she will ask "why" and then say "talk to me" (which means explain it to me).

Livi came over for lunch today and the two of them were adorable playing together.  They really just love being together and it is adorable to watch.  Molly has a lot of work left to do as far as sharing goes, but she has gotten a lot better.

She has started asking us to tell her No and she laughs and goes on to the next thing and tells us to "tell me no" again and again.  At bedtime she told us to "tell me no napping" and we all laughed a told her, no we won't tell you no napping, it's bedtime.  Jim started carrying her up the stairs and our clever daughter said "tell me no going upstairs" she is very crafty!

Here are some videos: